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Ashya King

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Registered: 31-08-2007

Ashya King

Having listened to the news over the last few days on this, I was thinking, well they haven't actually done anything illegal, surely that is their choice, but I'd like to know why.
Then we hear a European arrest warrant has been issue. So what have they done I ask?
Then I see a video made by the father, about getting Proton Beam treatment and I'm thinking just typical NHS can't provide some of the leading edge treatments.
But what disgusted me most was when the father said that when he spoke to the consultant about this and Ashya's treatment, the consultant apparently responded that if he questioned his treatment he'd get a child protection order  Shocked
People have the right to 2nd opinions, who the hell does this consultant think he is?
Of course the parents have now been arrested and are separated from their son and so being prevented from making the arrangements necessary for the proton beam therapy. This really is outrageous. Check that the child's welfare is OK by all means but this is way over the top.
I've just been watching the reports on Sky News and now there's the suggestion that the parents will be extradited.
I just hope there are some experienced lawyers and QC's who will offer to represent the parents for free and take Southampton General Hospital & Hampshire Police to task.
There's now another parent with child on Sky news saying they couldn't get the treatment here and had to get advice from the USA.
What does everyone else think?
Edit: Telegraph Report
There is a You Tube video linked there as well.
166 REPLIES
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Re: Ashya King

A bit more info http://www.bbc.co.uk/news/uk-29001388
A bit of a conflict between parties as to who knows what's best for the child.
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Re: Ashya King

I hope the Police questioned the Consultant and asked him "Is there any reason that you know of, why the parents would have done this?"
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Re: Ashya King

I think I would like to hear from the hospital before making a judgement.
Proton Beam treatment is available in the UK but only for eye conditions at present. Some countries including America are testing it for other conditions.
Unless I've missed it I haven't seen confirmation that the treatment will be provided in Spain.
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Re: Ashya King

The father didn't say it was in Spain artmo, please watch the video and/or the news.
Quote from: Strat
A bit of a conflict between parties as to who knows what's best for the child.

I don't know about "a bit" Dick. In my experience, having encountered a couple of consultants in my life with that sort of attitude, such people should be struck off.
A good consultant, who knew his/her job would say what possible treatments were available for certain conditions, what was available in the UK and what was available on the NHS and what was available outside the UK.
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Re: Ashya King

Sky News are now headlining "Have the Police been too heavy handed in the case of Ashya King"
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Re: Ashya King

PBT is not always suitable for brain tumours so a decision could have been made at Southampton General Hospital to this effect. We need to hear their side of the story.
PBT
If thought suitable the NHS can refer patients abroad for treatment. Two centres for PBT are being set up here in the UK.
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Re: Ashya King

"are being set up" means it's not currently available. Are you a Doctor artmo? I heard the news and what was said, and it did say the PBT was not always appropriate for "some" tumours I believe it was. But the point is the parents are entitled to a 2nd opinion which that consultant clearly didn't wish to allow from what the father says. So it might seem Southampton General Hospital have not said anything to date because they clearly can't defend the consultant's remarks that the father claims were said. So maybe they are taking their time to concoct some cock and bull story to attempt to justify the consultant's unacceptable behaviour.
From your link btw
Quote
Proton Beam Therapy (PBT) is a type of radiotherapy that uses a beam of positively charged subatomic particles (protons). It is a highly specialised form of radiotherapy that can be used in some situations instead of X-rays to treat brain tumours. One of the key advantages of PBT over conventional radiotherapy is that it is more targeted, doing less damage to healthy tissue, and so giving fewer side effects.

Precisely the reason the father wants to get this treatment.
Edit: And the benefits of PBT were very clearly explained by a Professor that were interviewed on BBC Breakfast.
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Re: Ashya King

Nigel Evans and Esther Rantzen both on Sky News just now saying that the parents should be with their child not in jail, for the child's benefit.
And quite right too.
nadger
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Re: Ashya King

Anything involving medical treatment of children can be very immotive.
When I was having chemo at The Churchill I found seeing teenagers getting treatment really upsetting.
Parents naturally want to do the best for their children but I'm not convinced that travelling to Spain with such a sick child was the best course of action.
I've no doubt that the consultant at Southampton will have discussed this case with fellow consultants at leading childrens hospitals.
The comments from Cancer Research UK were interesting - A great charity that I do have a DD payment to each month.
Looks like it'll be 2018 before 2 centres will be set up in UK.
Ultimately our thoughts must be with Ashya

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Re: Ashya King

Quote from: nadger
I've no doubt that the consultant at Southampton will have discussed this case with fellow consultants at leading childrens hospitals.

Really, in light of what's being said (and not said), I have no confidence in that whatsoever. And in any event the "best consultants" would have been discussing it with leading consultants in the USA and elsewhere where PBT treatment is available, not just children's hospitals in this country, and advising the parents accordingly. I don't get the impression that this consultant has done anything like that.
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Re: Ashya King

@nadger, I agree with your comments. I feel the doctors will have fully discussed the treatment with the family and I can understand that they may have been upset by the information and reacted as they did.
The hospital is a centre of excellence for this type of treatment and the consultant is a very experienced individual that others have praised for his treatment of their children.
Dr. Gary Nicolin
I have a friend that has a small 6year old in a similar hospital in Newcastle. At this hospital they have consulted doctors at Great Ormand Street and the Brompton for second opinions and I'm sure this would have been done in Ashya's case.
It's a very sad case and I hope there is a good outcome.
Community Veteran
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Re: Ashya King

See my comment above.
nadger
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Re: Ashya King

@artmo - Dr Nicolin certainly seems experienced in his field.

Overall I think that our thoughts should be with Ashya as we don't, and never will have, all the details of what has been said or done.
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Re: Ashya King

Although there are many documented benefits of PBT, it does not mean that Ashya is a suitable candidate. It depends on the type or tumour, it stage and grading.

I don't think we know what type of tumour he has, but it's speculated that he has a giloma (an aggressive, malignant tumour affecting the brain stem). The prognosis is unfortunately not very good with this type of tumour.